They first had EKG's done on them and the results came back good for them.
Next they had Echo Cardiograms, which is an ultrasound of their hearts. It sure was fun entertaining Kingston on the table while she rubs that yummy warm jelly all over his belly and chest. Try imagining holding onto a 17 month olds hands down with out upsetting him even more. They had a movie playing but it isn't enough to keep them happy especially when they have someone prodding at their bellies.
We play tickle wars and get him to laugh for a little while and then it's over, well until it's Hunters turn 2 minutes later.
And they thought he was going to be the easy one. Hunter can not stand to be contained what so ever, so let's just say the next 15 minutes is really FUN!!
Haha it wasn't to bad. We had fun with bubbles and cho cho trains and watching Clifford. And then before we knew it was all done and over with. We were then headed back to our room and waiting on the doctor for the results.
He came in and told us that their hearts looked good and listened to their chests and felt around on them.
He told us that they both had slight murmurs but it's very common for children of this age to have them and to not worry. He then told us that they had two different leaky valves. One which is also very common for children to have and the other which is common for MPS 2 patients to have. He said they were both slight and can't be heard with a stethoscope. Hunters was slightly more than Kingston's. He said the leaky valve that has to do with Hunters patients usually shows severe affects around their twenties. But hopefully with the enzyme replacement therapy it will help to keep their hearts the way they are so there won't be any severe effects.
I pray that this treatment helps them internally and that it helps from the progression of their suffering organs. Everyones prayers are greatly appreciated. We can't have enough hope at this point in time.
