Nash's first treatment went very well. He started off a little slower than his brothers since they had to give him benedryl through iv first and then we had to wait half an hour before he could get his elaprase through iv. Other than that he did good. He slept the whole time other than waking up for feedings.
Hunter and Kingston did pretty well other than when they would get bored and thought they had enough of the tv. We some how managed to keep them in their beds, well Jeremy had to lay in bed with Kingston and keep him occupied while I sat beside hunters bed and the crib. Talk about in the way in such a small area. :)
Overall today was a success. No one had reactions and nash got his stitches out afterwards. Hopefully now we can get into a routine of things!
Thursday, January 31, 2013
First treatment=success
Nash's Birth
December 11th 2012 Nash entered this world at 7lbs 13ozs 20 1/2 inches long. He was born at 37wks gestation. He swallowed fluid at birth and was TTP. He was transfered from Lady of Lourdes hospital to Wilson Memorial hospital the next morning after his birth. He came out of his tacipnic stage around 5 days old. He was off oxygen for two days about to come home and his o2 levels dropped that night after he was circumcised and had to go back on oxygen. He had a hard time coming back off the oxygen. He stayed in the NICU until he was 27 days old.
The next week I took him with the other boys to their first doctor's appointment with their new geneticist at Albany Medical Dr. Adams. The week after that January 24th Nash had a port placed by Dr. Siskin at Albany Medical while Hunter and Kingston received their first infusions at Albany since their transfer from Upstate University in Syracuse.
Today January 31st Nash is going to be receiving his first enzyme replacement therapy (ERT) at 7 weeks old.
Wish us luck for no reactions and that we are able to control all three kids and that the day goes smoothly.
