Tuesday, February 28, 2012
Now it seems real.
The minute we received the news we could not believe that it was true. We were hoping that they messed up somewheres and had it wrong. Especially since their were no genetic diseases running through our families. We were hoping and praying for the best. And then their test results came in from the University of Alabama... They had tested for two different types of MPS, Hunters and Hurlers syndrome. They came back negative for Hurlers but positive for Hunters. A person with out Hunters Syndrome has 35,790 of these specific enzymes in their body that helps their bodies to function and break down things! Hunters results showed that he only had 36 of the 35,790 enzymes his body needs. Kingston's body is producing 0 of those enzymes. Those results really hit me hard, I had proof in my hands that my babies were sick. I know they are in Gods hands right now and am just enjoying the time that he gives me with them.
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You're in my prayers! I love you guys so much!
ReplyDeleteThanks Dar! We love you too!
ReplyDeleteBritt, u and ur boys will make it though. Just remember dr's r always quick to give a time on someone's life. They said my uncle Shawn would not live to the age of 13, he's in his 50s. They told my mom she would not live to her 30s and Shes in her 40s.. that's BC they kept there faith and so did friends and family. I will pray every day for ur little ones and for u and ur hubby. Hope every thing works out for the best!! Love u Britt!!
ReplyDeleteyour just beginning your journey, hold strong God performs miracles every day.
ReplyDeleteThank you guys! We have alot of faith and believe God is with us each and every step of the way. I'm gonna do everything I can to make sure my boys have a long fulfilling life, they are in Gods hands and he will take care of them. We are also thankful for all the doctors that he has put in our lives, they have all been so helpful and informative along the way!!
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