Wednesday, March 21, 2012

Opthamologist Appt's

I took the boys to Dr. Merrello in Binghamton NY who is a opthamologist. Hunter previously wore glasses since he was diagnosed with Motor Nystagmus at 6 months. I saw Doctors at Vanderbilt Medical in TN who told me we could not do anything to help it and also a eye Doctor in Binghamton NY that could not do anything for it other than glasses. We had found a doctor out of Akron Ohio, Dr. Hertle that specializes in Nystagmus. We set up an apt in September of 2011 and Dr. Hertle told us that there was a corrective surgery for the Nystagmus and the right head tilt it was giving him. He told us there would be more risk and damage if he did not get the surgery since it would give him severe arthritis in his neck and back because Hunter was choosing his vision over his neck. We were told that we would get a call and from there we would be able to set up an appointment for the surgery.
November 18th, 2011 we went from Nashville TN back to Akron Ohio to have the surgery on both of Hunters eyes. Since then Hunter has been in recovery and not in glasses until we see Dr. Hertle again June 20th 2012. Hunter seems like he can see better even though he does not have glasses on, he's not running into everything like he used to. He no longer had the head tilt that he used to have, even though now he does slightly have a 5 degree head tilt to the right again. Which may need to be corrected further down the road with surgery again. On the appointment with Dr. Merrello Hunters vision had improved, his left eye that used to be +3 is now a +1.75. I do believe the surgery was a success. The jitter of his eyes has slowed down quite a bit as well. Dr. Merrello did not see any Nystagmus at his visit. I do see it when he is in deep thought, it is not completely gone. Hunter had developed an astigmatism in both eyes since the surgery as well. Glasses should correct the astigmatism, but will not be putting him in then till June.
This was Kingston's first time seeing an opthamologist. There has never been any signs of the nystagmus or that he may have vision problems. He did find that Kingston is developing a slight astigmatism in both eyes at this time, and he fears that he may be near sided. He said that he wasn't going to put him in glasses at this time, and that he would see him back in a year.
I set up the appointment on June 20th for Hunter and Kingston, I want a second opinion on Kingston's eyes and want to know that waiting for glasses for him is the right decision. I also feel that Dr. Hertle is a great doctor and trust very much in his opinion.
So now we are just waiting for that June appointment and we will know from there what our next step will be for their eyes.

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