I know there has been many questions regarding Clubbs Baby Boy # 3, so I'm hoping this post will inform everyone that has been wondering. We found out in May that we were expecting again, of course we had the scare that this baby would have the disease. So we did the early CVS testing at 10 weeks. It came back that he was a boy. A boy has a 50% chance that he would have the disease. A girl would n...
ot of had the disease, but a 50% chance of being a carrier of it. From there they sent out his DNA to California to a genetics lab where they tested for the X Linked mutation in his chromosomes.
At 14 weeks of pregnancy we got the phone call that this baby also had MPS 2. From there we had to decide what we were going to do. It broke my heart knowing that I was AGAIN going to have another boy with this life threatening disease but with all the fear and sadness I could never abort my unborn baby.
I would not trade my two boys for anything... YES I would ask for this disease to be gone but other than that I would not change anything about them. They are such a joy in all our lives. I could not imagine taking a life so pure that is going to be just like them.
Atleast now we know ahead of time and are prepared. And this baby will be able to get treatment much sooner, so the affects of the disease won't be as harsh on his body. So that is a big plus!
At 14 weeks of pregnancy we got the phone call that this baby also had MPS 2. From there we had to decide what we were going to do. It broke my heart knowing that I was AGAIN going to have another boy with this life threatening disease but with all the fear and sadness I could never abort my unborn baby.
I would not trade my two boys for anything... YES I would ask for this disease to be gone but other than that I would not change anything about them. They are such a joy in all our lives. I could not imagine taking a life so pure that is going to be just like them.
Atleast now we know ahead of time and are prepared. And this baby will be able to get treatment much sooner, so the affects of the disease won't be as harsh on his body. So that is a big plus!
No comments:
Post a Comment