FIRST Infusion with Ports!

Today is the first time in 4 weeks that the boys got their medicine. They were sick the first week, then vacation the 2nd, and last week they had their ports placed in.
I am so glad that we went the route we did with the ports! Today was such a breeze compared to the last 3 months.
We got there at 8:30 & they were hooked up to their medicine by 9:20! It was such a painless and more enjoyable process than getting ivs!
Everyone in the room had to put masks on, except the boys since they decided they weren't having anything to do with it. She then had to scrub them down and disinfect the area around their ports(under the left arm). She then put a needle that looked like a push pin into the port, which did not hurt since we put on the numbing cream before we left the house. She made sure it was accessed, which it was. Put tape on it and they were good to go. It maybe took 2-3 minutes to do all of that.
The boys were a little off edge because it was something new to them, but I'm sure next week they will realize it wasn't that bad and settle down some more. The hardest part for them was taking off the tape at the end when they were all done. And if that's the most pain they have to endure through this whole process, I think we can all handle that!! :)
Other than that treatment went very. The one nurse today told me that I have two very strong and healthy looking boys, which I am very proud of under the circumstances.

I still have boys on the bioplasma cell salts, and I see a HUGE difference when they take them. With all the traveling we did in the last month the boys didn't get their bioplasma cell salts & boy do I regret it! I saw a lot of storage in their faces. They got sick, which they haven't been since the winter time. I knew I needed to get them back on them religiously like they previously were. So I set my phone for three times a day to have the medicine and within a week their faced were starting to look better. I had family commenting on how good they were looking. Within two weeks of being on the cell salts they are having solid bowel movements, which I've noted in other posts how they've never had them till this medicine.
And now I know it's the cell salts because they haven't had their ELAPRASE, their therapeutic enzyme replacement since I've started this up again.
I always have the nurses asking about it or what I'm doing because they are looking so great! I'm really just glad that I found something that I KNOW HELPS THEM!! :)